Losing Alex
This is his story

Losing my baby was one of the greatest pains I ever had to endure. This is his story and ours.

Alex was a ‘planned’ baby. My now ex-husband and I waited six years before trying to conceive him. We wanted to be ready, both financially and emotionally. At first we weren't seriously trying, but one month I was a whole week late, and I became anxious, so I went and bought a book on how to conceive. The first time we put the book to use it worked!! We were so excited!! The whole pregnancy was like a little miracle for both of us, we were so happy! It was a miracle the first time we felt the bump in my stomach, the first time we heard the heartbeat and the first time we felt him move.

Never once we were told that 33% of all pregnancies never make it, not from the doctor, or nurses, nor from the childbirth instructor. We were led to believe that we would have a healthy child with absolute no danger. I was due Feb. 26th 1995, and everything was going great, it was such an uneventful pregnancy, I was never sick a day, never spotted. I worked through my 37th week and then went on maternity leave. My mom arrived from Italy to help me with the baby on February 21st, and that day we went to hear the heartbeat, it was loud and clear, very strong. We made an appointment for March 1st...in case I was still pregnant, and the doctor reassured me that she wouldn't let me be more than one week late. That week with my mom here after not seeing her for 2 years, we did many things, and I must admit I must have not paid too much attention on how often the baby kicked. On February 22 I started going into labor, the contractions were 20 minutes apart, but they stopped. February 23rd, after dinner, the baby kicked me real good, I will never forget that because it was the last time I vividly remember him moving. On Saturday, February 25th, the day before I was due, while trying to go to sleep I noticed that the baby was not moving. Come to think of it I did not remember him move at all that day. Then I felt something...now I know that ‘something’ was nothing because I felt that same thing when I already knew he was gone. However, at the time it reassured me that it was the ‘calm before the storm.' Sunday came and went, I remember he ‘weighed’ on me, I kept feeling for him to move, but nothing. I expressed my concerns to my mom, but she said that babies just don’t move much at the very end, there is no room. Monday morning first thing I was on the phone with the doctor’s office. The nurse said to me: "Yes, babies don’t move much at the very end, but, if it’ll make you feel better, why don’t you come in and listen to the heartbeat?" At that point I was not worried anymore, I don’t know why, I took my time to get ready, then my mom and I headed to the doctor’s office.

I will never forget what the doctor said while she placed the Doppler on my stomach: "Common Kido, don’t worry your mom!" Both the nurse and my mom were talking to me, actually I was translating back and forth while the doctor must have searched for that heartbeat for a few minutes. I noticed that she a hard time finding it, but I refused to believe there was anything wrong. She then asked the nurse to bring in the ultrasound machine, at that point we were all staring at a baby that wasn't moving, no heartbeat, no nothing. My mind kept racing...I am sure there is an explanation for this! The doctor after a while said: "I am afraid I don’t have very good news." She went around and around showing me where the baby’s heart was, and there was no mistake, he was dead. My poor mom could not believe it, I was in complete shock... How could this happen? What could possibly cause a baby to die at full term? I never heard of such event. The doctor could not give me any answers, she said we would have to wait to see the baby before a reason could be determined. The nurse accompanied my mother and I to the perinatal office where they have more sophisticated Ultrasound machines to confirm what they called ‘fetal demise’--how I hated that word. Alex was full term, he was far from a fetus.

They sent me home to talk to Nick, and to decide what to do, only thing, Nick was at work. So that’s where I went. I remember waiting for him at the receptionist desk, I had no idea what I was going to say to break the news. He came down the corridor with a big, big smile on his face, he thought we came to visit him to go to lunch together, but his expression turned quickly once he saw my face. He was worried instantly. "What’s wrong? Tell me what’s wrong?" I rambled something to go outside with me and once there I told him that the doctors couldn't find the heartbeat, the baby was dead. "Why?? How?". Answers I didn’t know, what they told me at the perinatal office is that at this late stage it was most likely a cord accident, but we would have to wait. That was most likely the worse day of my life, I shed more tears that day than the previous ten years combined. Nick went home with me, and from there we called the doctor to schedule an induction. I would have to wait that whole day and that following night before I could go in. I was in labor for 18.5 hours, 3.5 of those pushing, it seemed like such a cruel joke, all of that pain for nothing. My mother, my husband and my best friend were all there to witness the ‘birth’. When he was born the doctor told me that Alex had the cord around his neck, which made it obvious it was a cord accident.

The love that followed the birth of my child exceeded my greatest expectations. It was still a wonder to give birth to him, and when I first saw him I still smiled. What a way to find out what a mother’s love is all about. Somehow for those few hours I spent with Alex I couldn’t cry. I was in such an elated state to finally see him, comparing features with ours, and I was so proud. I would have done anything to hear him cry, ANYTHING!! I was numb but very sad. Tears would not come until later, and they were flowing like a river.

Picking out a cemetery plot and casket was extremely hard for me, I was devastated this could have happened at all. It’s been a few months since my baby’s death, and I must say I feel a little better about it. I followed everyone’s advice to grieve and cry anytime I wanted to. So now, when I think of Alex I think of him with lots of love from my heart instead of that excruciating pain I used to feel. Not that I do not shed a tear for him every now and then, but it’s a tear from my heart, I will always miss him. He is now my little angel in heaven. He taught me a lot about life without even crying once.

That's how I ended the story in the fall of 1995, but there was more to Alex's death that we knew at the time. 

When his little brother Nicky was born with Epidermolysis Bullosa (EB), it was almost obvious that Alex had the same thing. One Dr. with EB experience told me that EB fetuses are more likely to be stillborn (and miscarried) than a healthy baby... although he couldn't tell me why.

Alex had a lot of skin missing and peeling, quite a bit more and the same as an EB patient. He had been dead for several days, and it is normal for stillborn babies to lose their skin whether they have EB or not, but I am yet to see a photo of another stillborn baby that looked quite like Alex skinwise.

We will never know for sure what exactly killed him, if it was a cord accident like we assumed at the time, or the EB. Of course, for us, it is extremely hard to think that Alex was healthy. It is perhaps better that we'll never know for sure.

~Alex's Corner~
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If tears could build a stairway, and memories a lane, I'd walk right up to Heaven and bring you home again.

 

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The beautiful painting is the work of Richard Zolan

Edward Robert Hughes - Night With Her Train of Stars and Her Great Gift of Sleep, 1912
Night With Her Train of Stars and Her Great Gift of Sleep, 1912
Edward Robert Hughes
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