Inspirations for
EB parents

How God chooses a mom for a child with special needs
by Erma Bombeck

Welcome to Holland
I am often asked to describe the experience of raising a child with a disability-to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

The most beautiful flower
A very special poem. Get the tissue paper for this one!

Parent's Rights
Parents of children with disabilities have rights too... these 12 "Rights" are taken from "Reach Out and Teach", a parent's handbook distributed by the American Federation for the blind.

Perfect Child?
After reading this, you will know how truly 'perfect' our children are....

The silent, constant scream
Parents of EB children are silently, constantly screaming... read why

If you would like to share a poem or inspiration regarding raising disabled children... please email Silvia! Thank you!!!!

The following quote is taken from
the Down Syndrome for New Parents website

Professor Jerome Lejeune, Nobel Prize Winner, Discoverer of the gene for Down syndrome
"Many years ago, my father was a Jewish physician in Braunau, Austria. On a particular day, two babies had been delivered by one of his colleagues. One was a fine, healthy boy with a strong cry. His parents were extremely proud and happy. The other was a little girl, but her parents were extremely sad, for she was a mongoloid [Down syndrome] baby. I followed them both for almost fifty years. The girl grew up, living at home, and was finally destined to be the one who nursed her mother through a very long and lingering illness after a stroke. I do not remember her name. I do, however, remember the boy's name. He died in a bunker in Berlin. His name was Adolf Hitler."

Someone who understands

A Storeowner was tacking a sign above his door that read "Puppies for Sale." The signs have a way of attracting children. Soon a little boy appeared at the sign and asked, "How much are you gonna sell those puppies for?" The store owner replied, "Anywhere from $30-$50."
The little boy reached into his pocket and pulled out some change.
"I have $2.37, can I look at them?" The store owner smiled and whistled.
Out of the kennel came his dog named Lady, running down the aisle of his store followed by five little puppies. One puppy was lagging considerably behind. Immediately the little boy singled out the lagging, limping puppy. He asked, "What's wrong with that little dog?" The man explained that when the puppy was born the vet said that this puppy had a bad hip socket and would limp for the rest of his life.
The little boy got really excited and said "That's the puppy I want to buy!"
The man replied "No, you don't want to buy that little dog. If you really want him, I'll give him to you."
The little boy got upset. He looked straight into the man's eyes and said "I don't want you to give him to me. He is worth every bit as much as the other dogs and I'll pay the full price. In fact, I will give you 2.37 now and 50 cents every month until I have him paid for."
The man countered, "You really don't want to buy this puppy son. He is never gonna be able to run, jump and play like other puppies." The little boy reached down and rolled up his pant leg to reveal a badly twisted, crippled left leg supported by a big metal brace. He looked up at the man and said, "Well, I don't run so well myself and the little puppy will need someone who understands."
The man was now biting his bottom lip. Tears welled up in his eyes, he smiled and said, "Son, I hope and pray that each and every one of these puppies will have an owner such as you."

Reaching milestones

by: Sheryl Trowbridge

When a child reaches a new milestone, the parents are happy and proud.
When a child with special needs reaches a new milestone, the parents are happy and proud and they celebrate. They celebrate because they have just witnessed a miracle, and they know it.

A child with special needs has a harder time at achieving what other children do so easily. A child with special needs has to struggle and work hard just to be able to roll over. A child with special needs may even need to be taught how to sit or to crawl. They need to be taught, what comes so easily to other children.

As you watch your child struggle for weeks, months or even years to reach a milestone, you see the disappointment and frustration in his eyes when he cannot do it.

As you watch you child struggle with determination for weeks, months, or even years to reach a new milestone, you see the excitement and the pride when he finally does it.
You cry, you laugh, you thank God for giving you this special moment that you will cherish for the rest of your life, and you celebrate.

For you have just witnessed a miracle, and you know it.

~ Your Cross ~

The young man was at the end of his rope. Seeing no way out, he dropped to his knees in prayer.
"Lord, I can't go on," he said. "I have too heavy a cross to bear.
" The Lord replied, "My son, if you can't bear its weight, just place your cross inside this room. Then, open that other door and pick out any cross you wish."
The man was filled with relief. "Thank you, Lord," he sighed, and he did as he was told.
Upon entering the other door, he saw many crosses, some so large the tops were not visible. Then, he spotted a tiny cross leaning against a far wall. "I'd like that one, Lord," he whispered.
The Lord replied, "My son, that is the cross you just brought in."

**When life's problems seem overwhelming, it helps to look around and see what other people are coping with. You may consider yourself far more blessed than you imagined.**

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Inspirations for Mothers

Inspirations

Favorite Quotes

Back to Nicky's EB Info World

Victims ask for pity, Victors look for challenge.
Victims worry about who is to blame, Victors find a way to make a difference.
Victims complain, Victors take action.
- Ralph Marston.

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