Playing: You will be in my heart by Phil Collins

Clinical Pictures

ALERT!
Before you scroll down, please be forewarned that this page includes several pictures of my son's wounds and blisters. These are not pretty pictures. I am finally putting them up on his site to give family, friends, and people in general an idea of how brutal EB is to my son and to every child afflicted with this dreadful condition.
Thank you for understanding.


Nicky's damage on his face after a relatively 'mild' fall (on carpet).
Skin got torn off his cheek, chin, nose, upper lip and inside his mouth.


His left hand had surgery to release the fingers on 8/2002. 8 months later the fingers are still fairly straight except for the pinky and ring fingers. The index and middle fingers do straighten out quite well, but the wrist is always raw.

This wound on his leg has been there for over two years. Just as it looks like it's healing, it gets injured again and it takes months to get it better. 


His knees always look like this-they start healing on one side and then they get re-opened quite easily.


His feet are always pretty bad.... 


This is just one of the kind of blisters that Nicky gets. They can get even larger than this, leaving 2nd degree burn-like wounds.

His feet are always raw at the ankle and look like this 100% of the time. Unless a new blister comes up, like above. The only reason why he even has toes is because I always put 1" gauze in between them.


His arms are always pretty raw... :-(

Below are pictures of Andy, he also had Recessive Dystrophic EB like Nicky.
His mommy wanted to share his pics but unsure of where to put them-she wanted them to be available to view for those interested in seeing clinical pictures of him in an effort to explain what he webt through in a better way.
Email Andy's mommy here with your comments or questions. Thank you.
Please note. Andy passed away in late march 2003.

Some may own castles on the banks of the Rhine,
and hire an orchestra each morning at nine.
But richer than I they will never be...
I had a mom who made Web pages for me!

~Nicky's Realm on the Web~
[Nicky's Journal] [Nicky's Story] [Nicky and Epidermolysis Bullosa] [Surgery Tales] [Picture Gallery] [Halloween Gallery] [Recent Photos] [1st Birthday] [2nd Birthday] [3rd Birthday] [4th Birthday] [5th Birthday] [6th Birthday] [7th Birthday] [8th Birthday] [9th Birthday] [DisneyWorld 2000] [Nicky's Wish] [Nicky's Toy Zone] [Nicky's Web Rings and Awards]

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  Last Updated: July 02, 2006
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